Salus.coop it is a framework driven by citizens for the governance and management of health records. The purpose of this model to legitimize citizens’ rights in the control of their own health records while making data sharing easier in order to accelerate research innovation in healthcare. This framework involves research and analysis while combining, key agents ideas in the healthcare field. The model covers three key issues:
- Data governance and sharing;
- Technological framework;
- Legal framework.
Genomcore is Salus’ technological partner. Salus recently won the Transforming the use and governance of personal health data challenge, organized by D-Lab a programme of Mobile World Capital.
Salus’ winner proposal is based on a model of share and governance of health clinical data based on informed consents and Genom.care